Patient Engagement Guide Alert: New Case Study online!

Co-Creating: Patient Initiated Product Development

Claudia and Ilona Brandt are twin sisters. They are SMA (spinal muscular atrophy) patients and founders of the SMArty-Symposium in Germany. Through their disease, they regularly observe unmet needs and optimization potentials for their medical aids and other treatment and care related technologies.

 

Through their disease, they regularly observe unmet needs and optimization potentials for their medical aids and other treatment and care related technologies. Their unending investigations and discussions about improvements started as early as about twelve years of age. At that time, Ilona and Claudia Brandt tried to solve their daily problems through simple actions, like moving their wheelchair in a sloping position on the boardwalk to shift pressure and reduce pain.

 

They started to think about a high sensitivity control platform for the seat regardless of the wheelchair model. This led to first sketches and outlines and numerous contacts with wheelchair manufacturers. However, finding a partner was quite difficult. Finally, they started to co-develop with one of their former civilian service helpers at their school, who now owns a company for standing systems and mobility solutions. In close cooperation they overcame all challenges and co-created a seat-tilting platform which can be adapted to any wheelchair. The product was introduced to the markets at REHACARE, Düsseldorf, in September 2018 and is now available to patients!

 

To see the full case study please visit our Patient Engagement Guide!

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