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After evaluating and identifying the right patient representatives and assessing the regulatory framework conditions some companies may still struggle with a question that may sound simple but can be really tricky when it comes to acting: How to approach a patient or a patient organization in the best way?

In diesem Patienten-Podcast berichten Risiko-Gruppen von ihren ganz persönlichen Gedanken, Sorgen und Lösungen rund um die Themen, die sie in Zeiten von Corona am meisten beschäftigen.

Wir möchten mit Familien in Deutschland in Kontakt treten, die direkt oder indirekt mit AADC-Mangel leben. Ziel des Austauschs ist es, mehr darüber über die Versorgungssituation zu erfahren. Durch das Gespräch mit Ihnen möchten wir herauszufinden, welche Art von Informationen Ihnen auf diesem schweren Weg geholfen hätten, sich sicherer und als Familie, die mit AADC-Mangel lebt, besser wahrgenommen zu fühlen.

Sponsors need to reach out to the patient communities where they are active and offer information (as it becomes available) and support. Sponsors have to rethink their communications activities and create a calming effect. Companies and researchers need to create a Patient Communication Plan

admedicum Business for Patients organized a series of small roundtables with patient and industry experts. This an anonymized summary of those conversations in order to help you with your own decision making. With the current challenges in the healthcare system, we believed it important to listen to patients...

Some companies may ask themselves whether they can actually work together with patients. The clear and simple answer to that is: YES, they are! Nevertheless, there are laws and behavioral guidance that must be followed when talking to patients, which define who can talk, when and how, about what.

A major requirement for sufficient and successful patient engagement on a European level is to understand the different structures, functions, and relevance. First of all, if you interact with patient organizations, it is mandatory to distinguish between their level of professionalization for taking their capacity...

These days there is no “business-as-usual”. Of course, we all are trying to meet our duties in our families, in our professional life, and in our societies. But we all feel how much the Corona Crisis has changed our daily routines. What is true for all of us is even more impactful for all patients with chronic diseases

admedicum freut sich, die strategische Partnerschaft mit dem Münchner Unternehmen Trials24 für das neue gemeinsame Programm namens patient2site verkünden zu können! Dieses Programm soll Biopharmaunternehmen und CROs bei der Patientenrekrutierung für klinische Studien unterstützen. Im Folgenden finden Sie die wichtigste

An indispensable prerequisite for the implementation of patient engagement within the company is to know first of all what patients want. This includes their needs, desires, priorities and preferences. This is increasingly recognized in the pharmaceutical industry. In major publications on collaboration with patients..

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