Experts for Patient Engagement

We understand patients. And we understand industry. We bring them together.

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News

Patient engagement in 2030

Join us for the event on 3 December about how patient engagement contributes towards building a new ecosystem for drug development & therapylearn more …

Announcing patient2site

admedicum's partnership with Trials24 to speed clinical trial recruitmentlearn more …

Patient Organizations Supporting Their Members During COVID-19

Special feature highlighting best practiceslearn more …

Business for Patients is in our DNA.

Why cooperate with patients?

Including patient expertise during the entire product life-cycle is key for truly patient-focused innovative products and services. It is instrumental in a successful business. However, how can this be translated into practice? That’s exactly where admedicum comes in.

 

What?

We help prepare your organization and shape the patient interactions in a way that creates sustainable value for both patients and your business. We provide “fit for purpose” approaches to establishing concepts, tools, advisory groups, networking, coaching and management support where it can help overcome the challenges of a complex relationship between patients and industry.

 

How?

We provide down to earth day-to-day patient-centric business solutions. Together with our clients from the industry, we make patient-industry collaboration happen. We act as advisors, designers, and enablers to build trustworthy and effective relationships between patients and the industry. We help to merge the beneficial impact for patients and value-for-money for the industry.

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Special Feature

How Patient Organizations Support Their Members During COVID-19

admedicum would like to present some best-practice examples of how patient organizations have managed to react quickly to an unpredictable situation. 

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About us

About us

admedicum team members have the credibility, expertise, skills and experience to represent both the patient and industry perspective. We have worked on the patient side and in pharma and medtech industry positions. ...

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Meet the team

Team

We are a European network of patient engagement experts. Get to know us and find out how to get in contact, it's easy. 

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Pegasus event series

Pegasus - Patient Engagement Networking

Bringing together patients, patient organizations and stakeholders from the healthcare industry for knowledge exchange and networking ...

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Case studies

Case studies

Learn more about our services and see some case studies in areas like "Understanding patient’s needs", “Patient-focused products and services” and “Patient Engagement Management.”

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Online Course Patient Engagement in Europe

e-learning Patient Engagement Europe

admedicum created an e-Learning course with Forum Institute containing six modules on how to initiate and manage collaborations with patients and patient organizations successfully.

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Testimonials

Sabine Wagner, Board member and regional group leader Network Neuroendocrine Tumors (NeT) e.V.

Many thanks to all of you for the great elaboration of the project and the extensive exchange. I am still impressed that after the initial long questionnaire, which we worked out together over and over again, such a great final result was achieved and that this was only possible because many patients concerned had the opportunity to actively participate in the survey/discussion.

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Emma Margarete Reil, Chariman of Sklerodermie e.V.

The Sklerodermie e.V. in connection with the scleroderma experts of the DNSS (German Network for Systemic Scleroderma) asked admedicum for support in conducting a survey among more than 1200 scleroderma patients in Germany. The aim was to investigate the extent to which scleroderma patients benefit from the infusion therapy, which is recommended but currently not reimbursed and therefore difficult to obtain.

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Lupin Pharmaceuticals, Zug, CH

By systematically involving 390 myotonia patients across 18 European countries through the project MYOPATH, admedicum® was instrumental in demonstrating EMA the great need for patient access to Namuscla® (mexiletine). The EMA Committee of Orphan Medicinal Products (COMP) explicitly highlighted the quality of the MYOPATH survey methodology that led to the capture of important information regarding a lack of treatment access resulting in patient harm.

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Ana Mingorance, Chief Development Officer LouLou Foundation, London, UK

The CDKL5 Research & Family conference, which Philipp was instrumental with in shaping the agenda, was an exceptionally great meeting! I had a chance to talk to many of the families and I know they appreciated these days and loved how much opportunity they had to participate and tell their stories and help shape the field and advance it. This was truly the first patient-centric meeting I’ve ever attended, and that was very much thanks to Philipp‘s vision.

 

Undisclosed pharma participant on the same conference: „You and Carol-Anne organized the best disease-focused family meeting I ever attended.  The interaction and co-collaboration amongst all constituents was extremely beneficial to everyone in attendance.  I especially appreciated hearing directly from the caregivers their needs and wants for clinical trials and new medications.“

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Steffen Stürzebecher, SVP Head of Innovation Unit Specialty Therapeutics, Grünenthal 

His vision of a patient centric approach to pharmaceutical development, in particular in rare and orphan diseases, together with the implementation of a concrete series of patient focused events has created a momentum that our company is still benefitting from.

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Horst Mehl, past-president and currently honorary president of Mukoviszidose e.V., the German Cystic Fibrosis Association

 During his time as CEO of Mukoviszidose e.V., the German Cystic Fibrosis (CF) Association (2002 – 2014) and Managing Director of our research affiliate, Mukoviszidose Institut GmbH (2006 – 2015), I got to appreciate Andreas Reimann. I am a father of a son living with CF and I am grateful to what Andreas has contributed to the lives of ...

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Susan Stephenson , RN BSN CCRN Independent Rare Disease Pain Advocate and Consultant N. Chesterfield, VA USA 

 Philipp possesses all the many skills needed and essential for bringing  together patient organizations and their KOLs  into the limelight of industry! For more than 30 years, I have promoted genetic diseases and pain awareness as a health professional with a genetic disease and chronic pain.

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Dr Jenny Royle, Senior patient-centricity programme leader of Cancer Research UK, on panel facilitator Rachel Jones

Rachel interacts with patients and their families with both tact and ease, ensuring that we end up with networks of people engaged and wanting to be involved. She has an ability that I think is rare to find: naturally picking up on people's non-verbal as well as verbal meanings very quickly.

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Siobhan Southam, Global Communications Lead AstraZeneca

 She is differentiated by her skill at delivery and bringing people together to ensure projects always deliver to time and with much good humour along the way! A true people person, she thrives in organisational situations that others might find tricky, embracing change and challenge herself and ensuring that others benefit and grow ...

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News

 

 

Patient engagement in 2030: how can patient engagement contribute towards building a new ecosystem for drug development and therapy will be held on 3 December 2020 in Amsterdam with Holland BIO. Save the date and looking forward to seeing you.

admedicum met with Joachim Sproß, managing director of the German Society for Muscular Diseases, to talk about the challenges that the corona crisis poses for patients and self-help. 

Our colleagues Andreas and Robert attended the European Conference on Rare Diseases online recently and share their reactions here.