Experts for Patient Engagement

We understand patients. And we understand industry. We bring them together.

read more …

News & Events

patient2site

admedicum and Trials24 join forces to accelerate clinical trial recruitmentread more …

Visit with Dutch Neuromuscular Patient Group

About our trip to see all that the fantastic Spierziekten Nederland is doingread more …

Why patient engagement is an integral part of the healthcare industry

Read our blogread more …

Business for Patients is in our DNA.

Why cooperate with patients?

Including patient expertise during the entire product life-cycle is key for truly patient-focused innovative products and services. It is instrumental in a successful business. However, how can this be translated into practice? That’s exactly where admedicum comes in.

 

What?

We help prepare your organization and shape the patient interactions in a way that creates sustainable value for both patients and your business. We provide “fit for purpose” approaches to establishing concepts, tools, advisory groups, networking, coaching and management support where it can help overcome the challenges of a complex relationship between patients and industry.

 

How?

We provide down to earth day-to-day patient-centric business solutions. Together with our clients from the industry, we make patient-industry collaboration happen. We act as advisors, designers, and enablers to build trustworthy and effective relationships between patients and the industry. We help to merge the beneficial impact for patients and value-for-money for the industry.

Testimonials

Emma Margarete Reil, Chariman of Sklerodermie e.V.

The Sklerodermie e.V. in connection with the scleroderma experts of the DNSS (German Network for Systemic Scleroderma) asked admedicum for support in conducting a survey among more than 1200 scleroderma patients in Germany. The aim was to investigate the extent to which scleroderma patients benefit from the infusion therapy, which is recommended but currently not reimbursed and therefore difficult to obtain.

read more

Lupin Pharmaceuticals, Zug, CH

By systematically involving 390 myotonia patients across 18 European countries through the project MYOPATH, admedicum® was instrumental in demonstrating EMA the great need for patient access to Namuscla® (mexiletine). The EMA Committee of Orphan Medicinal Products (COMP) explicitly highlighted the quality of the MYOPATH survey methodology that led to the capture of important information regarding a lack of treatment access resulting in patient harm.

read more

Ana Mingorance, Chief Development Officer LouLou Foundation, London, UK

The CDKL5 Research & Family conference, which Philipp was instrumental with in shaping the agenda, was an exceptionally great meeting! I had a chance to talk to many of the families and I know they appreciated these days and loved how much opportunity they had to participate and tell their stories and help shape the field and advance it. This was truly the first patient-centric meeting I’ve ever attended, and that was very much thanks to Philipp‘s vision.

 

Undisclosed pharma participant on the same conference: „You and Carol-Anne organized the best disease-focused family meeting I ever attended.  The interaction and co-collaboration amongst all constituents was extremely beneficial to everyone in attendance.  I especially appreciated hearing directly from the caregivers their needs and wants for clinical trials and new medications.“

read more

Steffen Stürzebecher, SVP Head of Innovation Unit Specialty Therapeutics, Grünenthal 

His vision of a patient centric approach to pharmaceutical development, in particular in rare and orphan diseases, together with the implementation of a concrete series of patient focused events has created a momentum that our company is still benefitting from.

read more

Horst Mehl, past-president and currently honorary president of Mukoviszidose e.V., the German Cystic Fibrosis Association

 During his time as CEO of Mukoviszidose e.V., the German Cystic Fibrosis (CF) Association (2002 – 2014) and Managing Director of our research affiliate, Mukoviszidose Institut GmbH (2006 – 2015), I got to appreciate Andreas Reimann. I am a father of a son living with CF and I am grateful to what Andreas has contributed to the lives of ...

read more

Susan Stephenson , RN BSN CCRN Independent Rare Disease Pain Advocate and Consultant N. Chesterfield, VA USA 

 Philipp possesses all the many skills needed and essential for bringing  together patient organizations and their KOLs  into the limelight of industry! For more than 30 years, I have promoted genetic diseases and pain awareness as a health professional with a genetic disease and chronic pain.

read more

Dr Jenny Royle, Senior patient-centricity programme leader of Cancer Research UK, on panel facilitator Rachel Jones

Rachel interacts with patients and their families with both tact and ease, ensuring that we end up with networks of people engaged and wanting to be involved. She has an ability that I think is rare to find: naturally picking up on people's non-verbal as well as verbal meanings very quickly.

read more

Siobhan Southam, Global Communications Lead AstraZeneca

 She is differentiated by her skill at delivery and bringing people together to ensure projects always deliver to time and with much good humour along the way! A true people person, she thrives in organisational situations that others might find tricky, embracing change and challenge herself and ensuring that others benefit and grow ...

read more

Read more

About us

About us

admedicum team members have the credibility, expertise, skills and experience to represent both the patient and industry perspective. We have worked on the patient side and in pharma and medtech industry positions. ...

read more

Meet the team

Team

We are a European network of patient engagement experts. Get to know us and find out how to get in contact, it's easy. 

read more

Pegasus event series

Pegasus - Patient Engagement Networking

Bringing together patients, patient organizations and stakeholders from the healthcare industry for knowledge exchange and networking ...

read more

Case studies

Case studies

Learn more about our services and see some case studies in areas like "Understanding patient’s needs", “Patient-focused products and services” and “Patient Engagement Management.”

read more

Online Course Patient Engagement in Europe

e-learning Patient Engagement Europe

admedicum created an e-Learning course with Forum Institute containing six modules on how to initiate and manage collaborations with patients and patient organizations successfully.

read more

News

 

 

A major requirement for sufficient and successful patient engagement on a European level is to understand the different structures, functions, and relevance. First of all, if you interact with patient organizations, it is mandatory to distinguish between their level of professionalization for taking their capacity...

admedicum is happy to announce a partnership with Trials24 to accelerate patient recruitment to help Biopharma companies and CROs complete their clinical trials on time and bring innovative drugs to patients faster.

admedicum was very pleased to have the chance to visit the Dutch muscle organization Spierziekten Nederland in Baarn, Netherlands!