News

We are pleased to announce our latest news to you.

It’s time for Europe to bridge the gap in newborn screening for spinal muscular atrophy. The European Alliance for Newborn Screening in Spinal Muscular Atrophy calls upon the government of Europe to include a test for SMA in national newborn screening programmes.

Patient Partnering in Clinical Development (PPCD) 2021 is focusing on how this influences the patient’s journey and involvement as partners and what we have learnt to put in place for the next steps to the new norm!

The patient association MPS España and the patient engagement expert group admedicum Business for Patients are excited to announce their strategic partnership.

Attention deficit hyperactivity disorder, or ADHD for short, is often associated with children. Only a few think of affected adults! The symptoms persist, at least in part, in 50-80% of those affected as children into adulthood, often with far-reaching consequences. Their care urgently needs to be improved - leading experts agreed on this during an expert discussion. Approaches for improving care were also discussed during the meeting. The discussion was supported by Takeda, a company active in the field of ADHD.

Ihre Überzeugung ist: Das Gesundheitssystem ist für den Patienten da! Darum sollen Patientenbedürfnisse und die Ausrichtung von Unternehmen im Gesundheitswesen zusammenpassen.

You want to make a difference for patients and share our vision of a health-care system focused on the needs of patients? Do you live and breath matching patients’ needs with the capabilities of healthcare companies – as we do?

Nine patient representatives from nine different countries all around Europe are talking about 2020 and giving a hopeful outlook for 2021.

patient2site: Technology combined with unmatched patient engagement services to create successful patient recruitment strategies, trial awareness and boost enrollment.

We take immense pride in being recognized by BioNTech SE for having been part of the unprecedented "project lightspeed" that eventually brought the first evidence-based and approved COVID-19 vaccine to the global population.

The Institute of Patient Experience - IEXP - and admedicum, join forces to expand in Spain and Latin America and help conduct patient-centered trials to decrease dropout rates in clinical studies.

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