We are pleased to announce our latest news to you.
Inspiration for 2020: The story of the OMERACT working group and patient involvement in creating patient reported outcomes
The OMERACT (Outcome Measures in Rheumatology) myositis working group coordinated patient input into the development of improved outcome measures for IIM by conducting an international survey with patients, caregivers, and healthcare professionals to identify which outcomes with regard to the quality of life matter most.
Nothing about patients without patients. This is how admedicum works. And so we also produced a new video that deals with the decision-making situation of patients who can participate in a clinical study.
LS Academy and admedicum Business for Patients are pleased to invite you to the Pegasus Networking Reception on Monday 2 March from 18.00-20.00. This event will feature an interactive parliamentary-style debate moderated by Paola Kruger, EUPATI Italy, and Roger Legtenberg, Upstrong, former CEO of PSR Clinical Research, where participants will be guided through a lively debate of current issues in patient engagement in research and development.
We are delighted to announce Roger Legtenberg as a new independent Expert Partner to our team! Roger, who runs his own consultant firm Upstrong and who is based in the Netherlands, brings significant expertise in regard to clinical development and operations, especially in the rare diseases, and the involvement of patients in the design and recruitment of clinical trials.
Topics include: Why Patient Engagement, Patient Landscape, Legal and Behavioural Compliance, Contacting Patients and Patient Organisations, Collaboration and Co-Creation, Performance Measurement. You will learn how to initiate and manage collaboration with patients in the e-Learning programme.