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What these services have in common is that they will only have a patient impact if they provide solutions to real problems. This can only be achieved if a detailed understanding of the patient journey (treatment path) and different patient typologies is given. Such understanding cannot be obtained if companies try to work only with physicians (whose role remains important), since physicians don’t live with the disease and often cannot know or judge why certain decisions are made by patients in daily life. The patient journey and what is relevant to them can only be systematically determined when it is done together with affected patients.

admedicum webinar: Enhancing clinical trial recruitment: successful industry strategies using patient engagement took place on 6 November 2019. We explored how the industry can engage with patients to support clinical trial recruitment rather than just taking the classic method of opening more trial sites. 

admedicum, in collaboration with WAPO, Lupin Pharmaceuticals held a PEGASUS Patient Engagement Networking event on 10 December in Leiden. We hosted around 40 attendees from patient organizations, interested patients, companies, and other stakeholders in healthcare in an informal networking event over drinks.

 

A study design that is acceptable to patients may not only be important for the actual relevance of a clinical study, but also for the speed of recruitment and protocol-compliant retention during the study. Patient involvement can therefore directly influence time to market.

admedicum webinar: Successful industry strategies for implementing Federated European Registries. We explored how the industry can engage with patients to support the formation of strong patient organizations and how that step is important to the creation of federate patient registries. Watch the full recording now.

It is essential for the company's goals and direction to fully understand patient needs early on from a patient’s point of view, identify potential benefits and provide appropriate solutions for diagnostic and therapeutic problems.

admedicum, in collaboration with Peptomyc, hosted a PEGASUS Networking Event on 30 September in Barcelona. We had the great pleasure to invite patient organizations, companies and other stakeholders in healthcare to a free, informal networking event on the topic of patient engagement in the healthcare industry.

 

Patient engagement cannot be regarded as a separate, independent area of a company; it must be anchored holistically within it. Engaging with patients runs through the entire value chain from research and portfolio management to development, market access, and marketing. Therefore, patient relations must be practiced actively and continuously, in order to identify and target patient needs and to satisfy them successfully in the long term.

Patient engagement is relevant to HTA in a number of areas that will be highlighted in the following blog. admedicum is a European network of patient engagement experts that makes patient-industry collaboration happen in the HTA process.

After an already successful partnership on the Patient Engagement Guide, admedicum has officially joined HollandBIO, an interest group of biotech companies in the Netherlands. admedicum and HollandBIO share the idea that a society in which biotechnology makes a maximum contribution to health, sustainability...

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