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admedicum presents best-practice examples that show how patient organizations have managed to react quickly to an unpredictable situation, to successfully adapt their services, and thus at the same time to be active patient advocates and strong partners for their members. 

Sponsors need to reach out to the patient communities where they are active and offer information (as it becomes available) and support. Sponsors have to rethink their communications activities and create a calming effect. Companies and researchers need to create a Patient Communication Plan

admedicum Business for Patients organized a series of small roundtables with patient and industry experts. This an anonymized summary of those conversations in order to help you with your own decision making. With the current challenges in the healthcare system, we believed it important to listen to patients...

Some companies may ask themselves whether they can actually work together with patients. The clear and simple answer to that is: YES, they are! Nevertheless, there are laws and behavioral guidance that must be followed when talking to patients, which define who can talk, when and how, about what.

These days there is no “business-as-usual”. Of course, we all are trying to meet our duties in our families, in our professional life, and in our societies. But we all feel how much the corona crisis has changed our daily routines. What is true for all of us is even more impactful for all patients with chronic diseases

A major requirement for sufficient and successful patient engagement on a European level is to understand the different structures, functions, and relevance. First of all, if you interact with patient organizations, it is mandatory to distinguish between their level of professionalization for taking their capacity...

admedicum is happy to announce a partnership with Trials24 to accelerate patient recruitment to help Biopharma companies and CROs complete their clinical trials on time and bring innovative drugs to patients faster.

admedicum was very pleased to have the chance to visit the Dutch muscle organization Spierziekten Nederland in Baarn, Netherlands!

An indispensable prerequisite for the implementation of patient engagement within the company is to know first of all what patients want. This includes their needs, desires, priorities and preferences. This is increasingly recognized in the pharmaceutical industry. In major publications on collaboration with patients..

The OMERACT (Outcome Measures in Rheumatology) myositis working group coordinated patient input into the development of improved outcome measures for IIM by conducting an international survey with patients, caregivers, and healthcare professionals to identify which outcomes with regard to the quality of life matter most.

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