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We are pleased to announce our latest news to you.

Some companies may ask themselves whether they can actually work together with patients. The clear and simple answer to that is: YES, they are! Nevertheless, there are laws and behavioral guidance that must be followed when talking to patients, which define who can talk, when and how, about what.

These days there is no “business-as-usual”. Of course, we all are trying to meet our duties in our families, in our professional life, and in our societies. But we all feel how much the corona crisis has changed our daily routines. What is true for all of us is even more impactful for all patients with chronic diseases

A major requirement for sufficient and successful patient engagement on a European level is to understand the different structures, functions, and relevance. First of all, if you interact with patient organizations, it is mandatory to distinguish between their level of professionalization for taking their capacity...

admedicum is happy to announce a partnership with Trials24 to accelerate patient recruitment to help Biopharma companies and CROs complete their clinical trials on time and bring innovative drugs to patients faster.

admedicum was very pleased to have the chance to visit the Dutch muscle organization Spierziekten Nederland in Baarn, Netherlands!

An indispensable prerequisite for the implementation of patient engagement within the company is to know first of all what patients want. This includes their needs, desires, priorities and preferences. This is increasingly recognized in the pharmaceutical industry. In major publications on collaboration with patients..

The OMERACT (Outcome Measures in Rheumatology) myositis working group coordinated patient input into the development of improved outcome measures for IIM by conducting an international survey with patients, caregivers, and healthcare professionals to identify which outcomes with regard to the quality of life matter most.

Nothing about patients without patients. This is how admedicum works. And so we also produced a new video that deals with the decision-making situation of patients who can participate in a clinical study.

 

LS Academy and admedicum Business for Patients are pleased to invite you to the Pegasus Networking Reception on Monday 2 March from 18.00-20.00. This event will feature an interactive parliamentary-style debate moderated by Paola Kruger, EUPATI Italy, and Roger Legtenberg, Upstrong, former CEO of PSR Clinical Research, where participants will be guided through a lively debate of current issues in patient engagement in research and development.

We are delighted to announce Roger Legtenberg as a new independent Expert Partner to our team! Roger, who runs his own consultant firm Upstrong and who is based in the Netherlands, brings significant expertise in regard to clinical development and operations, especially in the rare diseases, and the involvement of patients in the design and recruitment of clinical trials.

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