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We are pleased to announce our latest news to you.

EURORDIS - The Voice of Rare Disease Patients in Europe

Meet our Patient Engagement Expert Sheila Khawaja at the Conference in Bruxelles. She is looking forward to meeting you there

In the lectures at the Forum Seminar in Cologne by Dr. Andreas Reimann and Philipp von Gallwitz you will learn more about the topic - Patient Engagement & Patient Access - from KliFo to therapy. You can find all information about registration here

We are happy to exhibit at the DIA Europe conference in Vienna. While patient-access & engagement is again a big subject here, many people feel it is time to „walk the talk“. 

The inclusion of patient experience and expertise throughout the product lifecycle is key to delivering compelling, patient-oriented and innovative products and services. Patient engagement is also becoming increasingly important from a regulatory and reimbursement perspective, as well as in rehabilitation.

Claudia and Ilona Brandt are twin sisters. They are SMA (spinal muscular atrophy) patients and founders of the SMArty-Symposium in Germany. Through their disease, they regularly observe unmet needs and optimization potentials for their medical aids and other treatment and care related technologies.

admedicum and HollandBIO presented the Patient Engagement Guide (PEG) at this year’s Dutch Biotech Event on June 29 in Utrecht, NL.

admedicum recently moderated another pharma-patient forum about "Patient Engagement in pharmaceutical R&D“. Our client, a pharmaceutical company, invited advocates from a number of German patient groups, both for common and rare diseases. Joint working groups facilitated an exchange mainly on expectations, suggestions, and concerns on behalf of the patient advocates with regard to collaboration with the company.

We are delighted to announce that admedicum has the honor to call Maryze Schoneveld van der Linde a new Strategic Partner! Maryze, is a rare disease advocate and expert by experience regarding drug development, active patient involvement from the patient perspective, empowerment related issues and building networks. Maryze is a Pompe patient bound to wheelchair and thus has been advocating the actual real life experience of patients at many international conferences, events and company patient engagement initiatives. 

We are delighted to announce that admedicum has today welcomed a new Associate Partner to its team. Rachel Jones who is UK based, is former global Global Patient Centricity Lead at Astra Zeneca and experienced Patient Engagement Expert. She is a welcome member of our growing International consultancy team which aims to connect Pharmaceutical companies with patients in order to deliver the best solutions for all. Rachel has over a decades ...

Nancy Meyerson-Hess about the benefits of patient engagement in R&D in the latest ClinicalTrialsArena article. Nancy Meyerson-Hess, BA, MPhil, discusses the benefits of patient engagement in R&D Patient engagement, a strong term, but what does it really mean? 

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