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A study design that is acceptable to patients may not only be important for the actual relevance of a clinical study, but also for the speed of recruitment and protocol-compliant retention during the study. Patient involvement can therefore directly influence time to market.

admedicum webinar: Successful industry strategies for implementing Federated European Registries. We explored how the industry can engage with patients to support the formation of strong patient organizations and how that step is important to the creation of federate patient registries. Watch the full recording now.

It is essential for the company's goals and direction to fully understand patient needs early on from a patient’s point of view, identify potential benefits and provide appropriate solutions for diagnostic and therapeutic problems.

admedicum, in collaboration with Peptomyc, hosted a PEGASUS Networking Event on 30 September in Barcelona. We had the great pleasure to invite patient organizations, companies and other stakeholders in healthcare to a free, informal networking event on the topic of patient engagement in the healthcare industry.

 

Patient engagement cannot be regarded as a separate, independent area of a company; it must be anchored holistically within it. Engaging with patients runs through the entire value chain from research and portfolio management to development, market access, and marketing. Therefore, patient relations must be practiced actively and continuously, in order to identify and target patient needs and to satisfy them successfully in the long term.

Patient engagement is relevant to HTA in a number of areas that will be highlighted in the following blog. admedicum is a European network of patient engagement experts that makes patient-industry collaboration happen in the HTA process.

After an already successful partnership on the Patient Engagement Guide, admedicum has officially joined HollandBIO, an interest group of biotech companies in the Netherlands. admedicum and HollandBIO share the idea that a society in which biotechnology makes a maximum contribution to health, sustainability...

The healthcare system of the future sees the patient at the center of events. It talks to patients and not about patients, involving them in a meaningful way when developing new treatments. Communication is open and transparent, and there is joint decision-making with all stakeholders. In tomorrow’s healthcare system, trust and mutual respect are key elements, while any conflicting interests that may arise are honestly declared.

admedicum recently attended the HTAi 2019 meeting in Cologne, Germany entitled, “HTA beyond 2020: Ready for the New Decade?” At admedicum, we believe patient involvement in HTA is crucial for making the right decisions because health technology is FOR THE PATIENTS. We took the opportunity of other stakeholders being in Cologne to co-host a PEGASUS Networking Event to discuss the same topic as this blog with a group of diverse stakeholders including patient-representatives from several different disease-areas.

Since its release in 2018 the Patient Engagement Guide (PEG) has served subscribers from the pharmaceutical and biotech industry all over the world in their mission to incorporate Patient Engagement into their daily business.

Months have passed and admedicum has accompanied exciting projects, met inspiring people, participated in glowing discussions – all evolving around how to bring patients’ needs and industry’s’ potential closer together.

We are excited to share some of what we have learned and gather our experiences in the2.0 version of the PEG.

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