admedicum Patient Driven Solutions

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January 2026

Hamelmann E, Maison N, Schaub B, et al.

Early Risk Assessment and Recognition of Allergies in Children: Rationale, Methodology, and Proposed Algorithms

Allergy. 2026 Jan 25. doi: 10.1111/all.70224.

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(...) We also thank Ulrike Nowak, Meike Neukirchen, and Andreas Reimann from admedicum for their support of the Initiative Allergiescreening.

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Allergy

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December 2025

Addrizzo-Harris D, Winthrop K, O`Donnell A, Schmid A, Flume P, Metersky M, McShane PJ, Hart K, Hoenig C, Donga P, Schöborn S, Fastenau J.

Patient Perspectives on Treatment of Bronchiectasis With Brensocatib in the US

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February 2025

Shteinberg M, Obradovic M, van der Laan R, Hoenig C, Legtenberg RJ, Reimann ALG, Lorent N.

Insights from the European Nontuberculous mycobacterial pulmonary disease PAtient Disease Experience (ENPADE) survey- exploring disease burden and impact.

BMC Pulm Med. 2025 Feb 21;25(1):85. doi: 10.1186/s12890-025-03553-9. PMID: 39984983; PMCID: PMC11846451.

BMC Pulmonary Medicine

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December 2024

SMA NBS Alliance

Spinal muscular atrophy: Screen at birth, save lives. White Paper 2024

The initial White Paper (2021) was authored by a multi-stakeholder Steering Committee, with input from other experts and with admedicum acting as the secretariat of the Alliance, under the leadership of SMA Europe e.V., the umbrella organisation of European SMA patient organisations.

Writing team members included Dr. Andreas Reimann and Dr. Meike Neukirchen.

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November 2024

Vennedey V, Holling H, Steiner T, Schrader M, Grossmann H, Hoenig C.

Patient Preferences for Surgical Treatments for Benign Prostatic Hyperplasia: A Discrete Choice Experiment

JU Open Plus. 2. 10.1097/JU9.0000000000000226.

JU Open Plus

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December 2023

Auvin S, Goss J, Son Rigby C, Bilder D, Juandó-Prats C, Gofshteyn J, James E, Vila MC, Rico S.

STXBP1 ENGAGE: Families’ Lived Experiences with STXBP1-DEE

Poster presentation at American Epilepsy Society Annual Meeting, ID 767, Clinical Epilepsy / 4A. Classification and Syndromes.

Abstract, 2.114

Poster presentation at American Epilepsy Society Annual Meeting

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September 2023

Sansone V, Ashley EJ, Montagnese F, Gagnon C, Nowak U, Dang UJ, Turner C, Nikolenko N, Tard C, Zozulya-Weidenfeller A.

RevEal the burdeN on daily life for myotonic dyStrophy patients due to myotoniA: preliminary results of the ENSA survey.

P389 Myology Conference Poster.

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Abstract: Neuromuscular Disorders, Volume 33, S155 - S156, DOI: 10.1016/j.nmd.2023.07.353

Neuromuscular Disorders

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May 2023

Hoenig C, van der Laan R, Reimann A, Hoffmann M, Tyler S, Wiesmann C, Obradovic M.

Eliciting Patient Insights on the Burden of Nontuberculous Mycobacterial Lung Disease (NTM-LD) and Healthcare Gaps in Germany Through Qualitative Semi-structured Interviews.

Adv Ther. 2023 Jun;40(6):2915-2926. doi: 10.1007/s12325-023-02519-9. Epub 2023 May 8. PMID: 37150804.

Advances in Therapy

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February 2023

Díaz-Manera J, Urtizberea JA, Schey C, Kole A, von Gallwitz P, Whiting A, Foerster D, Zozulya-Weidenfeller A.

Impact of restricted access to, and low awareness of, mexiletine on people with myotonia: a real-world European survey.

Neuromuscul Disord. 2023 Feb;33(2):208-217. doi: 10.1016/j.nmd.2022.12.008. Epub 2022 Dec 15. PMID: 36706619.

Neuromuscular Disorders

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July 2022

Welte T, Dinkel J, Maurer F, Richter E, Rohde G, Schwarz C, Taube C, Diel R.

Patients with lung disease caused by non-tuberculous mycobacteria in Germany: a trans-sectoral patient-oriented care concept.

Pneumologie. 2022 Aug;76(8):534-546. doi: 10.1055/a-1855-0858. Epub 2022 Jul 25.

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The authors would like to thank Dr. Andreas Reimann and Christian Hoenig from admedicum Business for Patients for their operational support in developing the care concept and publication. _{[English translation]}

Pneumologie

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October 2021

Diaz-Manera J, Hewamadduma C, Meola G, Montagnese F, Nowak U, Pleticha R, Sacconi S, von Gallwitz P, Zozulya Weidenfeller A.

The Impact of non-dystrophic Myotonia on PAtients and Caregivers’ qualiTy of life (IMPACT) survey results

Congress Poster

Abstract: Neuromuscular Disorders, Volume 31, Supplement 1, S116 - S117, 10.1016/j.nmd.2021.07.246

Neuromuscular Disorders

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June 2021

Diaz-Manera J, Hewamadduma C, Meola G, Montagnese F, Sacconi S, von Gallwitz P, Nowak U, Pleticha R, Zozulya Weidenfeller A.

Understanding the Impact of Non-Dystrophic Myotonia on Patients and Caregivers: Results from a Burden of Disease Healthcare Survey.

EMJ. 2021;6[2]:37-46.

European Medical Journal Reviews

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October 2020

Zozulya Weidenfeller A, Nowak U, Whiting A, Kole A, von Gallwitz P.

Need for therapy and effect of symptomatic treatment in myotonic disorders: the Myotonia Observation Survey of Patient Access to Therapy (MyoPath)

Poster presentation P.228

Abstract: Neuromuscular Disorders, Volume 30, Supplement 1, S112 October 2020, doi:10.1016/j.nmd.2020.08.227

Neuromuscular Disorders

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January 2018

Reimann A, von Gallwitz P, Harzheim L, Kolbe K, Nowak U, Gehrke K.

Patientenorientierung in Pharmaunternehmen

Monitor Versorgungsforschung (01/18), S. 58-65; http://doi.org/10.24945/MVF.01.18.1866-0533.2066

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Monitor Versorgungsforschung

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May 2016

Reimann A, Nowak U.

Requirements, deficits and preconditions of patient-centred health systems research in rare diseases

Kinder- und Jugendmedizin 2016; 16(03): 192-198DOI: 10.1055/s-0037-1616319

Kinder- und Jugendmedizin

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Science with Patients, not about Them