Empower Patient Communities

Streamline the strategic orientation of your patient advocacy efforts with workshops identifying the most effective strategies tailored to each patient landscape and your unique context.

Our approach: In-depth preparation in alignment with all your needs. Organization, execution, and interactive moderation concluded in a report.

Your outcomes: Comprehensive report with tactics linked to your company’s strategic imperatives and priorities based on timelines, resources needed and expected impact, giving a clear action plan.

Identify key patient stakeholders, understand their needs, and explore their willingness to engage, laying the foundation for impactful, collaborative partnerships that create value for both sides.

Our approach: We begin by understanding your indication area and then identify all relevant patient stakeholders including patient organizations, patient communities and patient experts, across the disease itself and related conditions. If desired, we can also conduct initial outreach to gain a deeper understanding of priorities and needs.

Your outcomes: A comprehensive report with a clear list of patient stakeholders, accompanied by detailed profiles and outreach priorities aligned with your objectives.

Bring together experienced patient experts to provide invaluable insights into the healthcare situation.

Our approach: We develop a charter as the foundation, identify and contract with the right participants, and execute the board meetings based on structured moderation guides.

Your outcomes: A dedicated, ongoing patient advisory board with experienced participants who are knowledgeable, engaged, and ready to share meaningful insights to support all your patient-related questions.

Co-create materials, gain qualitative insights and advice on specific topics directly from those living with the disease. Workshops can be in person or virtual with up to 10-12 individuals.

Our approach: We identify the right patients for your specific co-creation activity, manage contracting, and lead the workshop using a clear moderation guide and interactive design-thinking methodologies, enabling an effective creation process, whether virtual or in person.

Your outcomes: A comprehensive report that informs the development of materials such as trial information, patient education tools, adherence-support materials, and other patient-relevant resources based on patients’ perspectives.

Map the patient pathway to uncover access barriers and ensure people have access to diagnosis and treatments. People living with the condition every day are the true experts in identifying obstacles in healthcare.

Our approach: By applying a mixed-methods design (interviews followed by an online survey) we are able to understand, map, and validate the full patient pathway. All materials are co-created with those affected to ensure feasibility and reliability of the results. Our specialized, decentralized, multi-channel approach ensures an efficient and effective recruitment process.

Your outcomes: A comprehensive report including a clear illustration of the patient pathway and its key touchpoints. Access barriers and unmet needs are highlighted and paired with actionable recommendations for mitigation strategies to improve patient access and health outcomes.

Conduct interviews and surveys to better understand burden of disease, identify unmet medical needs and collect patient experience data which informs shared decision-making and increases awareness.

Our approach: Using qualitative methods (e.g., in-depth or semi-structured interviews and focus groups) and quantitative approaches (e.g., online surveys), we gather robust patient experience data. We co-create study elements with patients and HCPs, collect and analyze the data, all while following the latest guidance from the FDA (PFDD) and PFMD.

Your outcomes: A comprehensive report that can be used for medical writing of scientific publications or internal decision-making plus an executive summary and supplementary analytical files.

Gain a deep understanding of the needs and priorities of people living with the disease and use these insights to inform shared decision-making.

Our approach: We thoroughly analyze the full decision context, then select the most appropriate qualitative (e.g., interviews) and/or quantitative (e.g., Discrete-Choice Experiments) methodologies for your objectives. All development and execution follow the latest guidelines from IMI PREFER, ISPOR, and the FDA.

Your outcomes: High-quality insights that are ready for publication or internal decision-making, revealing patient needs and priorities that can be applied across multiple areas such as target product profiles, endpoint selection, and many other strategic decisions.

Take the first steps toward building a meaningful multi-stakeholder alliance, which can be led by a patient advocacy group, patient experts, or our non-profit sister organization, Partners4Patients Foundation.

Our approach: We begin by fully understanding your alliance goals and then conceptualize a clear charter outlining objectives, roles, and responsibilities. We develop initial materials to engage stakeholders and assess their needs, interests, and willingness to participate. We establish the contractual framework and manage the signing process. Once the alliance is formed, we can continue to support the management and execution of its activities.

Your outcomes: A comprehensive alliance concept supported by all necessary legal documents and outreach materials to approach relevant stakeholders. You receive initial outreach support and the first steps toward building a sustainable alliance with meaningful impact. In the long run, we ensure smooth operational management of the alliance to maximize its effectiveness and value.