Blog

Latest News

Insights, stories, and perspectives that advance meaningful patient engagement.
31.03.2026
The European SMA Newborn Screening Alliance
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 4
Read Post
03.03.2026
Why We Need (Mandatory) Regulations for In-Trial Interviews
Read Post
25.02.2026
Power of Patient-led Multi-Stakeholder Alliances: Hepatitis-free Cologne
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 5
Read Post
27.01.2026
European Patient Advocacy: Uniting Local PAGs To Be Stronger Together
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 6
Read Post
09.12.2025
Empowering clinical research and development through patient partnership
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 7
Read Post
20.11.2025
The Impact of Patient Expert Advisory Boards in R&D: A Decade of Breakthroughs
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 8
Read Post
28.10.2025
Global Genes and admedicum Launch Strategic Collaboration to Advance Patient-Driven Research
Read Post
22.10.2025
In‑Trial Interviews: Turn Participant Stories into Data that Drives Decisions
ITIs are qualitative, semi-structured interviews conducted with clinical trial participants
to capture their personal experiences of disease and treatment.
Read Post
14.10.2025
Keeping the End in Mind: Enhancing Decision-Making with Patient Preference Information (PPI)
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 9
Read Post
10.10.2025
Mental health as a key pillar of healthcare
A paradigm shift is taking place in medicine: health is increasingly understood holistically – as an interplay of physical, mental and social factors.
Read Post
10.09.2025
The Power of Information from Patients for Patients
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 10
Read Post
14.08.2025
Why do people join clinical trials?
Clinical trials are the engine of medical innovation, but they can’t move forward without the people who join them.
Read Post
07.08.2025
In‑Trial Interviews: Turn Participant Stories into Data that Drives Decisions
ITIs are qualitative, semi-structured interviews conducted with clinical trial participants to capture their personal experiences of disease and treatment.
Read Post
22.07.2025
Why Communication Matters in Patient Recruitment
Strengthen your recruitment outcomes and make clinical trials truly patient-relevant.
Read Post
03.06.2025
Why do people join clinical trials?
Clinical trials are the engine of medical innovation—but they can’t move forward without the people who join them.
Read Post
26.03.2025
The 3x3 of Patient Engagement in the JCA - Unlocking Value through Early Involvement
Under the EU’s Joint Clinical Assessment (JCA), patient engagement is no longer optional - it’s a prerequisite for successful market and patient access.
Read Post
25.02.2025
Patients on the Move! – Episode 10
Kirsty Cullen, Chief Executive of the Optimum Health Clinic in London, UK is passionate about raising awareness about complex fatigue-related illness and the integrative approach developed to optimize care.
Read Post
24.02.2025
Raising the Voice of NTM-PD Patients
ENPADE Survey Findings Published
Read Post
07.02.2025
Planning Joint Clinical Assessment Tackling Challenges & Engaging Patients
From a LinkedIn Live session held on Feb. 6, 2025
Read Post
23.01.2025
Measuring Meaningful Patient Engagement: Beyond Participation to True Impact
In the rapidly evolving landscape of healthcare and medical research, patient engagement has become more than just a buzzword.
Read Post
21.01.2025
Patients on the Move! – Episode 9
In this inspiring episode, host Roger Legtenberg welcomes Trish Bartley, a true pioneer in bringing mindfulness to people with cancer.
Read Post
09.01.2025
How to collaborate with a patient expert in clinical trial design and conduct
10 key considerations
Read Post
29.11.2024
Empowering Patients in Health Technology Assessment (HTA): A Crucial Step for Smarter, Fairer Decisions
The European healthcare landscape is undergoing a profound transformation due to the Joint Clinical Assessment.
Read Post
29.10.2024
Engaging People with Lived Experience to Improve Medicines Development
We're in the midst of a new era of patient engagement, where patients are taking an active role in their own care.
Read Post
11.10.2024
Patient Engagement Networking Event Milan 2024
Second edition of Patients and Industry in Milan with patient organisations, caregivers and industry representatives.
Read Post
02.10.2024
The Importance of Patient Involvement in HTA in Europe: Preparing for Joint Clinical Assessments
In the evolving healthcare landscape, patient involvement is becoming a critical element in decision-making processes, particularly in Health Technology Assessment (HTA) across Europe.
Read Post
10.05.2024
Patients on the Move! – Episode 8
In this enlightening 8th episode of the Patients on the Move Podcast, host Roger Legtenberg sits down with Jennifer MacDonald.
Read Post
05.04.2024
Patients on the Move! – Episode 7
In this enlightening 7th episode of the Patients on the Move Podcast, host Roger Legtenberg sits down with Pisana Ferrari.
Read Post
03.04.2024
Patients on the Move! – Episode 6
In this enlightening 8th episode of the Patients on the Move Podcast, host Roger Legtenberg sits down with Steve Clark.
Read Post
30.01.2024
Patient Engagement Networking Events
Read Post
09.11.2023
The Indispensable Role of Cognitive Interviews in Clinical Trials: A Comprehensive Overview
In the dynamic world of medical research, clinical trials are crucial for pioneering effective treatments.
Read Post
16.10.2023
Patient Advocacy and Patient Engagement in Latin America
Our online event examined the current landscape of patient advocacy and engagement across Latin America, with a keen focus on Colombia and Brazil.
Read Post
28.09.2023
Networking event Patient and Industry (Pazienti e Industrie) in Milan
The Pazienti e Industrie event in Milan brought together >40 participants from patient organizations, caregivers & industry representatives.
Read Post
27.07.2023
Embracing Empathy as a Core Value in Clinical Trials
In the rapidly evolving healthcare industry, there is a noticeable and positive shift towards a patient-centered approach, with a strong emphasis on empathy.
Read Post
26.06.2023
Patients on the Move! – Episode 5
In this enlightening 5th episode of the Patients on the Move Podcast, host Roger Legtenberg sits down with Jaime Sanders, aka 'The Migraine Diva'.
Read Post
02.06.2023
Unlocking the power of patient advisory boards in clinical development and trials
In the dynamic world of clinical development, one fact is undeniable: the patient voice is critical.
Read Post
05.05.2023
New project role as Secretariat for the Alliance for Pulmonary Hypertension
admedicum is pleased to support World Pulmonary Hypertension Day and would like to share our new project role as Secretariat for the Alliance for Pulmonary Hypertension.
Read Post
25.04.2023
Patients on the Move! – Episode 4
In this episode Bojana and Philipp discussed how patient advocacy & patient engagement can help prepare patient access.
Read Post
17.04.2023
My blind spot due to coping
Why we may develop "blind spots” when living with a chronic disease... Philipp von Gallwitz tells his personal story.
Read Post
03.04.2023
Patients on the Move! – Episode 3
Tom and Andreas share their thoughts on the roles & best practices for patient involvement in HTA processes.
Read Post
10.03.2023
Advanced Therapy Medicinal Products
Why patient engagement is even more important than in “traditional” therapies!
Read Post
06.03.2023
Rare Diseases Run 2023
admedicum, together with friends (family, collaborators, clients), participated in the 2nd edition of the Rare Diseases Run in Aachen, Amsterdam, and Cologne.
Read Post
22.02.2023
Patient Engagement Meetup in Paris
More than fifty participants responded to the invitation of admedicum and the French patient organizations Corasso and Seintinelles.
Read Post
21.02.2023
admedicum welcomes Dr. Tiziana Scanu to the team
We are very pleased to welcome Tiziana Scanu as Patient Engagement Manager.
Read Post
25.01.2023
Looking back at 2022 – an impression of attended conferences as an inspiration for 2023
At the beginning of this year, we took the time once more to reflect on our major learnings and most inspiring experiences from a selection of meetings and conferences
Read Post
25.11.2022
“Share-of-Voice” market model
Much more than ever before, the use of digital solutions and apps is high on the agenda in many board rooms and executive offices of pharmaceutical companies.
Read Post
20.11.2022
Co-creating a digital patient support solution for a rare disease
patient2care is a knowledge platform developed through co-creation with & for patients.
Read Post
26.10.2022
How to avoid the ‘valley-of-death’ in digital clinical trial recruitment
More than one-third of clinical trial budgets is spent on recruitment and about one-third of the trials are ultimately cancelled due to insufficient participation.
Read Post
04.10.2022
Patients on the Move! – Episode 2
"Patients on the Move!" is a brand-new podcast about Patient Engagement in Life Sciences by admedicum – PATIENT DRIVEN SOLUTIONS.
Read Post
26.09.2022
Patient Engagement Networking Barcelona 2022
The debate took place as part of the networking session organized by the Spanish Association for Lysosomal Diseases and admedicum.
Read Post
15.09.2022
Co-creating digital health applications and digital therapeutics (DTx)
Why it matters to obtain patient insights along the digital health app and DTx development journey
Read Post
13.09.2022
Patient-inclusion in clinical trial design recording
Ella Balasa and Dr. Andreas Reimann hosted a live discussion on Patient inclusion in clinical trial design – why it matters and how you can get started
Read Post
29.07.2022
Patients on the Move! – Episode 1
"Patients on the Move!" is a brand-new podcast about Patient Engagement in Life Sciences by admedicum – PATIENT DRIVEN SOLUTIONS.
Read Post
27.07.2022
Patient Engagement in 2030
Looking back at the Patient Engagement in 2030 symposium
Read Post
01.07.2022
admedicum supports Lymphoma Coalition and its CAR-T project
Call for participation!
Read Post
22.06.2022
patient2site: Enhancing Patient Enrollment in Clinical Trials
Technology combined with unmatched patient engagement services to create successful patient recruitment strategies, trial awareness and boosted enrollment
Read Post
01.06.2022
admedicum awarded Best Patient Engagement & Access Expert 2022
admedicum has been recognized as a key player in the field of Patient Engagement in the 2022 Biotechnology Awards programme of the Global Health and Pharma magazine
Read Post
01.05.2022
admedicum welcomes Dr. Vera Vennedey to the team
We are very pleased to welcome Vera Vennedey as Patient Engagement Consultant!
Read Post
23.02.2022
Health Technology Assessments Framework
While there has been a centralized European marketing authorization procedure for years, Health Technology Assessments (HTA) remained decentralized at state level.
Read Post
08.02.2022
SMA Newborn Screening Alliance wins EURORDIS 2022 Patient Engagement Award
The European Alliance for Newborn Screening in Spinal Muscular Atrophy (SMA NBS Alliance) was founded in 2020 by SMA Europe and a group of diverse stakeholders.
Read Post
25.11.2021
admedicum supporting the SMA Newborn Screening Alliance
admedicum is proud to support the European Alliance for Spinal Muscular Atrophy Newborn Screening in its role as the Secretariat.
Read Post
30.09.2021
admedicum opens office in Paris and announces Razak Ellafi joining the team
We are excited to announce the opening of admedicum Paris, France!
Read Post
11.08.2021
admedicum & the German Society for Muscular Diseases are proud to announce a joint development: patient2care
Patients with rare or complex diseases are often overwhelmed when it comes to finding their way in the healthcare system.
Read Post
19.07.2021
Why patient engagement matters
Hopefully you share our perspective that patient engagement should be fully integrated into drug development.
Read Post
14.06.2021
Patient Preferences and the PREFER project
REFER is a project from the Innovative Medicines Initiative (IMI). "IMI is the world's biggest public-private partnership in the life sciences.
Read Post
12.05.2021
Strategic Partnership of admedicum & Justin Stindt Consulting
In a number of projects admedicum and Justin Stindt Consulting have already successfully merged their expertise. The companies now are combining their skills tighter to create value for both patients and industry.
Read Post
23.03.2021
Launch of the Newborn Screening Whitepaper
It’s time for Europe to bridge the gap in newborn screening for spinal muscular atrophy.
Read Post
01.02.2021
MPS Spain & admedicum partner to improve the lives of people living with MPS
The patient association MPS España and the patient engagement expert group admedicum Business for Patients are excited to announce their strategic partnership.
Read Post
20.01.2021
Patient Power in the year 2021
Nine patient representatives from nine different countries all around Europe are talking about 2020 and giving a hopeful outlook for 2021.
Read Post
04.01.2021
BioNTech Recognizes Employees and Partners Including admedicum for Historic Vaccine
We take immense pride in being recognized by BioNTech SE for having been part of the unprecedented "project lightspeed" that eventually brought the first evidence-based and approved COVID-19 vaccine to the global population.
Read Post
30.09.2020
admedicum expands to the Netherlands and strengthens the leadership team
admedicum, a patient engagement expert consulting company, today announced their strategic expansion into the Netherlands and strengthening their leadership team.
Read Post
23.09.2020
Decentralized trials & the collection of routine practice data for the drug benefit assessment
Aparito and admedicum co-organised a roundtable with ten participants from the sector to discuss how decentralised trials can effectively collect data. Read the full summary.
Read Post
09.09.2020
Launch of the SMA NBS Alliance
Opening a new horizon for children born with SMA.
Read Post
20.05.2020
How companies can contact patients & patient organizations in a compliant & mutually beneficial way
Some companies may still struggle with a question that may sound simple but can be really tricky when it comes to acting.
Read Post
06.05.2020
Opportunities for a truly patient-focused product development
Sponsors need to engage with patients on any protocol design changes and actively communicate the change to minimize dropouts.
Read Post
21.04.2020
Patient Engagement to overcome challenges in clinical development resulting from the COVID-19 outbreak
admedicum Business for Patients organized a series of small roundtables with patient and industry experts. This an anonymized summary of those conversations in order to help you with your own decision making.
Read Post
06.04.2020
Working together with patients: practical guidance on legal & behavioral compliance
Some companies may ask themselves whether they can actually work together with patients. The clear and simple answer to that is: YES, they are!
Read Post
09.12.2025
Empowering clinical research and development through patient partnership
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 7
Read Post
20.11.2025
The Impact of Patient Expert Advisory Boards in R&D: A Decade of Breakthroughs
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 8
Read Post
28.10.2025
Global Genes and admedicum Launch Strategic Collaboration to Advance Patient-Driven Research
Read Post
14.10.2025
Keeping the End in Mind: Enhancing Decision-Making with Patient Preference Information (PPI)
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 9
Read Post
10.10.2025
Mental health as a key pillar of healthcare
A paradigm shift is taking place in medicine: health is increasingly understood holistically – as an interplay of physical, mental and social factors.
Read Post
09.11.2023
The Indispensable Role of Cognitive Interviews in Clinical Trials: A Comprehensive Overview
In the dynamic world of medical research, clinical trials are crucial for pioneering effective treatments.
Read Post
23.01.2025
Measuring Meaningful Patient Engagement: Beyond Participation to True Impact
In the rapidly evolving landscape of healthcare and medical research, patient engagement has become more than just a buzzword.
Read Post
27.07.2023
Embracing Empathy as a Core Value in Clinical Trials
In the rapidly evolving healthcare industry, there is a noticeable and positive shift towards a patient-centered approach, with a strong emphasis on empathy.
Read Post
02.06.2023
Unlocking the power of patient advisory boards in clinical development and trials
In the dynamic world of clinical development, one fact is undeniable: the patient voice is critical.
Read Post
10.03.2023
Advanced Therapy Medicinal Products
Why patient engagement is even more important than in “traditional” therapies!
Read Post
19.07.2021
Why patient engagement matters
Hopefully you share our perspective that patient engagement should be fully integrated into drug development.
Read Post
01.02.2021
MPS Spain & admedicum partner to improve the lives of people living with MPS
The patient association MPS España and the patient engagement expert group admedicum Business for Patients are excited to announce their strategic partnership.
Read Post
22.10.2025
In‑Trial Interviews: Turn Participant Stories into Data that Drives Decisions
ITIs are qualitative, semi-structured interviews conducted with clinical trial participants
to capture their personal experiences of disease and treatment.
Read Post
14.08.2025
Why do people join clinical trials?
Clinical trials are the engine of medical innovation, but they can’t move forward without the people who join them.
Read Post
03.03.2026
Why We Need (Mandatory) Regulations for In-Trial Interviews
Read Post
07.08.2025
In‑Trial Interviews: Turn Participant Stories into Data that Drives Decisions
ITIs are qualitative, semi-structured interviews conducted with clinical trial participants to capture their personal experiences of disease and treatment.
Read Post
09.12.2025
Empowering clinical research and development through patient partnership
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 7
Read Post
20.11.2025
The Impact of Patient Expert Advisory Boards in R&D: A Decade of Breakthroughs
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 8
Read Post
28.10.2025
Global Genes and admedicum Launch Strategic Collaboration to Advance Patient-Driven Research
Read Post
14.10.2025
Keeping the End in Mind: Enhancing Decision-Making with Patient Preference Information (PPI)
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 9
Read Post
10.10.2025
Mental health as a key pillar of healthcare
A paradigm shift is taking place in medicine: health is increasingly understood holistically – as an interplay of physical, mental and social factors.
Read Post
22.07.2025
Why Communication Matters in Patient Recruitment
Strengthen your recruitment outcomes and make clinical trials truly patient-relevant.
Read Post
03.06.2025
Why do people join clinical trials?
Clinical trials are the engine of medical innovation—but they can’t move forward without the people who join them.
Read Post
09.11.2023
The Indispensable Role of Cognitive Interviews in Clinical Trials: A Comprehensive Overview
In the dynamic world of medical research, clinical trials are crucial for pioneering effective treatments.
Read Post
07.02.2025
Planning Joint Clinical Assessment Tackling Challenges & Engaging Patients
From a LinkedIn Live session held on Feb. 6, 2025
Read Post
23.01.2025
Measuring Meaningful Patient Engagement: Beyond Participation to True Impact
In the rapidly evolving landscape of healthcare and medical research, patient engagement has become more than just a buzzword.
Read Post
09.01.2025
How to collaborate with a patient expert in clinical trial design and conduct
10 key considerations
Read Post
29.10.2024
Engaging People with Lived Experience to Improve Medicines Development
We're in the midst of a new era of patient engagement, where patients are taking an active role in their own care.
Read Post
27.07.2023
Embracing Empathy as a Core Value in Clinical Trials
In the rapidly evolving healthcare industry, there is a noticeable and positive shift towards a patient-centered approach, with a strong emphasis on empathy.
Read Post
02.06.2023
Unlocking the power of patient advisory boards in clinical development and trials
In the dynamic world of clinical development, one fact is undeniable: the patient voice is critical.
Read Post
10.03.2023
Advanced Therapy Medicinal Products
Why patient engagement is even more important than in “traditional” therapies!
Read Post
19.07.2021
Why patient engagement matters
Hopefully you share our perspective that patient engagement should be fully integrated into drug development.
Read Post
21.04.2020
Patient Engagement to overcome challenges in clinical development resulting from the COVID-19 outbreak
admedicum Business for Patients organized a series of small roundtables with patient and industry experts. This an anonymized summary of those conversations in order to help you with your own decision making.
Read Post
06.05.2020
Opportunities for a truly patient-focused product development
Sponsors need to engage with patients on any protocol design changes and actively communicate the change to minimize dropouts.
Read Post
23.09.2020
Decentralized trials & the collection of routine practice data for the drug benefit assessment
Aparito and admedicum co-organised a roundtable with ten participants from the sector to discuss how decentralised trials can effectively collect data. Read the full summary.
Read Post
01.02.2021
MPS Spain & admedicum partner to improve the lives of people living with MPS
The patient association MPS España and the patient engagement expert group admedicum Business for Patients are excited to announce their strategic partnership.
Read Post
22.06.2022
patient2site: Enhancing Patient Enrollment in Clinical Trials
Technology combined with unmatched patient engagement services to create successful patient recruitment strategies, trial awareness and boosted enrollment
Read Post
26.10.2022
How to avoid the ‘valley-of-death’ in digital clinical trial recruitment
More than one-third of clinical trial budgets is spent on recruitment and about one-third of the trials are ultimately cancelled due to insufficient participation.
Read Post
13.09.2022
Patient-inclusion in clinical trial design recording
Ella Balasa and Dr. Andreas Reimann hosted a live discussion on Patient inclusion in clinical trial design – why it matters and how you can get started
Read Post
26.03.2025
The 3x3 of Patient Engagement in the JCA - Unlocking Value through Early Involvement
Under the EU’s Joint Clinical Assessment (JCA), patient engagement is no longer optional - it’s a prerequisite for successful market and patient access.
Read Post
22.10.2025
In‑Trial Interviews: Turn Participant Stories into Data that Drives Decisions
ITIs are qualitative, semi-structured interviews conducted with clinical trial participants
to capture their personal experiences of disease and treatment.
Read Post
14.08.2025
Why do people join clinical trials?
Clinical trials are the engine of medical innovation, but they can’t move forward without the people who join them.
Read Post
03.03.2026
Why We Need (Mandatory) Regulations for In-Trial Interviews
Read Post
07.08.2025
In‑Trial Interviews: Turn Participant Stories into Data that Drives Decisions
ITIs are qualitative, semi-structured interviews conducted with clinical trial participants to capture their personal experiences of disease and treatment.
Read Post
14.10.2025
Keeping the End in Mind: Enhancing Decision-Making with Patient Preference Information (PPI)
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 9
Read Post
10.10.2025
Mental health as a key pillar of healthcare
A paradigm shift is taking place in medicine: health is increasingly understood holistically – as an interplay of physical, mental and social factors.
Read Post
09.11.2023
The Indispensable Role of Cognitive Interviews in Clinical Trials: A Comprehensive Overview
In the dynamic world of medical research, clinical trials are crucial for pioneering effective treatments.
Read Post
24.02.2025
Raising the Voice of NTM-PD Patients
ENPADE Survey Findings Published
Read Post
07.02.2025
Planning Joint Clinical Assessment Tackling Challenges & Engaging Patients
From a LinkedIn Live session held on Feb. 6, 2025
Read Post
23.01.2025
Measuring Meaningful Patient Engagement: Beyond Participation to True Impact
In the rapidly evolving landscape of healthcare and medical research, patient engagement has become more than just a buzzword.
Read Post
29.11.2024
Empowering Patients in Health Technology Assessment (HTA): A Crucial Step for Smarter, Fairer Decisions
The European healthcare landscape is undergoing a profound transformation due to the Joint Clinical Assessment.
Read Post
02.10.2024
The Importance of Patient Involvement in HTA in Europe: Preparing for Joint Clinical Assessments
In the evolving healthcare landscape, patient involvement is becoming a critical element in decision-making processes, particularly in Health Technology Assessment (HTA) across Europe.
Read Post
03.04.2023
Patients on the Move! – Episode 3
Tom and Andreas share their thoughts on the roles & best practices for patient involvement in HTA processes.
Read Post
10.03.2023
Advanced Therapy Medicinal Products
Why patient engagement is even more important than in “traditional” therapies!
Read Post
19.07.2021
Why patient engagement matters
Hopefully you share our perspective that patient engagement should be fully integrated into drug development.
Read Post
14.06.2021
Patient Preferences and the PREFER project
REFER is a project from the Innovative Medicines Initiative (IMI). "IMI is the world's biggest public-private partnership in the life sciences.
Read Post
12.05.2021
Strategic Partnership of admedicum & Justin Stindt Consulting
In a number of projects admedicum and Justin Stindt Consulting have already successfully merged their expertise. The companies now are combining their skills tighter to create value for both patients and industry.
Read Post
23.02.2022
Health Technology Assessments Framework
While there has been a centralized European marketing authorization procedure for years, Health Technology Assessments (HTA) remained decentralized at state level.
Read Post
26.03.2025
The 3x3 of Patient Engagement in the JCA - Unlocking Value through Early Involvement
Under the EU’s Joint Clinical Assessment (JCA), patient engagement is no longer optional - it’s a prerequisite for successful market and patient access.
Read Post
22.10.2025
In‑Trial Interviews: Turn Participant Stories into Data that Drives Decisions
ITIs are qualitative, semi-structured interviews conducted with clinical trial participants
to capture their personal experiences of disease and treatment.
Read Post
27.01.2026
European Patient Advocacy: Uniting Local PAGs To Be Stronger Together
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 6
Read Post
10.09.2025
The Power of Information from Patients for Patients
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 10
Read Post
14.10.2025
Keeping the End in Mind: Enhancing Decision-Making with Patient Preference Information (PPI)
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 9
Read Post
10.10.2025
Mental health as a key pillar of healthcare
A paradigm shift is taking place in medicine: health is increasingly understood holistically – as an interplay of physical, mental and social factors.
Read Post
25.02.2025
Patients on the Move! – Episode 10
Kirsty Cullen, Chief Executive of the Optimum Health Clinic in London, UK is passionate about raising awareness about complex fatigue-related illness and the integrative approach developed to optimize care.
Read Post
24.02.2025
Raising the Voice of NTM-PD Patients
ENPADE Survey Findings Published
Read Post
11.10.2024
Patient Engagement Networking Event Milan 2024
Second edition of Patients and Industry in Milan with patient organisations, caregivers and industry representatives.
Read Post
21.01.2025
Patients on the Move! – Episode 9
In this inspiring episode, host Roger Legtenberg welcomes Trish Bartley, a true pioneer in bringing mindfulness to people with cancer.
Read Post
23.01.2025
Measuring Meaningful Patient Engagement: Beyond Participation to True Impact
In the rapidly evolving landscape of healthcare and medical research, patient engagement has become more than just a buzzword.
Read Post
16.10.2023
Patient Advocacy and Patient Engagement in Latin America
Our online event examined the current landscape of patient advocacy and engagement across Latin America, with a keen focus on Colombia and Brazil.
Read Post
25.04.2023
Patients on the Move! – Episode 4
In this episode Bojana and Philipp discussed how patient advocacy & patient engagement can help prepare patient access.
Read Post
10.03.2023
Advanced Therapy Medicinal Products
Why patient engagement is even more important than in “traditional” therapies!
Read Post
19.07.2021
Why patient engagement matters
Hopefully you share our perspective that patient engagement should be fully integrated into drug development.
Read Post
23.03.2021
Launch of the Newborn Screening Whitepaper
It’s time for Europe to bridge the gap in newborn screening for spinal muscular atrophy.
Read Post
14.06.2021
Patient Preferences and the PREFER project
REFER is a project from the Innovative Medicines Initiative (IMI). "IMI is the world's biggest public-private partnership in the life sciences.
Read Post
29.07.2022
Patients on the Move! – Episode 1
"Patients on the Move!" is a brand-new podcast about Patient Engagement in Life Sciences by admedicum – PATIENT DRIVEN SOLUTIONS.
Read Post
31.03.2026
The European SMA Newborn Screening Alliance
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 4
Read Post
25.02.2026
Power of Patient-led Multi-Stakeholder Alliances: Hepatitis-free Cologne
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 5
Read Post
27.01.2026
European Patient Advocacy: Uniting Local PAGs To Be Stronger Together
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 6
Read Post
10.09.2025
The Power of Information from Patients for Patients
Highlights Count-Down to 10 Years admedicum in June 2026 Nr. 10
Read Post
28.10.2025
Global Genes and admedicum Launch Strategic Collaboration to Advance Patient-Driven Research
Read Post
10.10.2025
Mental health as a key pillar of healthcare
A paradigm shift is taking place in medicine: health is increasingly understood holistically – as an interplay of physical, mental and social factors.
Read Post
25.02.2025
Patients on the Move! – Episode 10
Kirsty Cullen, Chief Executive of the Optimum Health Clinic in London, UK is passionate about raising awareness about complex fatigue-related illness and the integrative approach developed to optimize care.
Read Post
24.02.2025
Raising the Voice of NTM-PD Patients
ENPADE Survey Findings Published
Read Post
11.10.2024
Patient Engagement Networking Event Milan 2024
Second edition of Patients and Industry in Milan with patient organisations, caregivers and industry representatives.
Read Post
21.01.2025
Patients on the Move! – Episode 9
In this inspiring episode, host Roger Legtenberg welcomes Trish Bartley, a true pioneer in bringing mindfulness to people with cancer.
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23.01.2025
Measuring Meaningful Patient Engagement: Beyond Participation to True Impact
In the rapidly evolving landscape of healthcare and medical research, patient engagement has become more than just a buzzword.
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09.01.2025
How to collaborate with a patient expert in clinical trial design and conduct
10 key considerations
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29.10.2024
Engaging People with Lived Experience to Improve Medicines Development
We're in the midst of a new era of patient engagement, where patients are taking an active role in their own care.
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03.04.2024
Patients on the Move! – Episode 6
In this enlightening 8th episode of the Patients on the Move Podcast, host Roger Legtenberg sits down with Steve Clark.
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30.01.2024
Patient Engagement Networking Events
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05.04.2024
Patients on the Move! – Episode 7
In this enlightening 7th episode of the Patients on the Move Podcast, host Roger Legtenberg sits down with Pisana Ferrari.
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16.10.2023
Patient Advocacy and Patient Engagement in Latin America
Our online event examined the current landscape of patient advocacy and engagement across Latin America, with a keen focus on Colombia and Brazil.
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10.05.2024
Patients on the Move! – Episode 8
In this enlightening 8th episode of the Patients on the Move Podcast, host Roger Legtenberg sits down with Jennifer MacDonald.
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06.03.2023
Rare Diseases Run 2023
admedicum, together with friends (family, collaborators, clients), participated in the 2nd edition of the Rare Diseases Run in Aachen, Amsterdam, and Cologne.
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28.09.2023
Networking event Patient and Industry (Pazienti e Industrie) in Milan
The Pazienti e Industrie event in Milan brought together >40 participants from patient organizations, caregivers & industry representatives.
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26.06.2023
Patients on the Move! – Episode 5
In this enlightening 5th episode of the Patients on the Move Podcast, host Roger Legtenberg sits down with Jaime Sanders, aka 'The Migraine Diva'.
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25.04.2023
Patients on the Move! – Episode 4
In this episode Bojana and Philipp discussed how patient advocacy & patient engagement can help prepare patient access.
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05.05.2023
New project role as Secretariat for the Alliance for Pulmonary Hypertension
admedicum is pleased to support World Pulmonary Hypertension Day and would like to share our new project role as Secretariat for the Alliance for Pulmonary Hypertension.
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03.04.2023
Patients on the Move! – Episode 3
Tom and Andreas share their thoughts on the roles & best practices for patient involvement in HTA processes.
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17.04.2023
My blind spot due to coping
Why we may develop "blind spots” when living with a chronic disease... Philipp von Gallwitz tells his personal story.
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10.03.2023
Advanced Therapy Medicinal Products
Why patient engagement is even more important than in “traditional” therapies!
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22.02.2023
Patient Engagement Meetup in Paris
More than fifty participants responded to the invitation of admedicum and the French patient organizations Corasso and Seintinelles.
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19.07.2021
Why patient engagement matters
Hopefully you share our perspective that patient engagement should be fully integrated into drug development.
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21.04.2020
Patient Engagement to overcome challenges in clinical development resulting from the COVID-19 outbreak
admedicum Business for Patients organized a series of small roundtables with patient and industry experts. This an anonymized summary of those conversations in order to help you with your own decision making.
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09.09.2020
Launch of the SMA NBS Alliance
Opening a new horizon for children born with SMA.
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20.05.2020
How companies can contact patients & patient organizations in a compliant & mutually beneficial way
Some companies may still struggle with a question that may sound simple but can be really tricky when it comes to acting.
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06.04.2020
Working together with patients: practical guidance on legal & behavioral compliance
Some companies may ask themselves whether they can actually work together with patients. The clear and simple answer to that is: YES, they are!
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06.05.2020
Opportunities for a truly patient-focused product development
Sponsors need to engage with patients on any protocol design changes and actively communicate the change to minimize dropouts.
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11.08.2021
admedicum & the German Society for Muscular Diseases are proud to announce a joint development: patient2care
Patients with rare or complex diseases are often overwhelmed when it comes to finding their way in the healthcare system.
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20.01.2021
Patient Power in the year 2021
Nine patient representatives from nine different countries all around Europe are talking about 2020 and giving a hopeful outlook for 2021.
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01.02.2021
MPS Spain & admedicum partner to improve the lives of people living with MPS
The patient association MPS España and the patient engagement expert group admedicum Business for Patients are excited to announce their strategic partnership.
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23.03.2021
Launch of the Newborn Screening Whitepaper
It’s time for Europe to bridge the gap in newborn screening for spinal muscular atrophy.
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04.10.2022
Patients on the Move! – Episode 2
"Patients on the Move!" is a brand-new podcast about Patient Engagement in Life Sciences by admedicum – PATIENT DRIVEN SOLUTIONS.
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26.09.2022
Patient Engagement Networking Barcelona 2022
The debate took place as part of the networking session organized by the Spanish Association for Lysosomal Diseases and admedicum.
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01.07.2022
admedicum supports Lymphoma Coalition and its CAR-T project
Call for participation!
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27.07.2022
Patient Engagement in 2030
Looking back at the Patient Engagement in 2030 symposium
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26.10.2022
How to avoid the ‘valley-of-death’ in digital clinical trial recruitment
More than one-third of clinical trial budgets is spent on recruitment and about one-third of the trials are ultimately cancelled due to insufficient participation.
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20.11.2022
Co-creating a digital patient support solution for a rare disease
patient2care is a knowledge platform developed through co-creation with & for patients.
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14.08.2025
Why do people join clinical trials?
Clinical trials are the engine of medical innovation, but they can’t move forward without the people who join them.
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