with patients

We are here to...

... support the understanding of the unique value of the knowledge possessed by people living with a disease

Founded by Patient Advocates and Patient-Driven

Decisions made together with those affected, not about them. Founded by two patient advocates, our team has a long tradition of working with individual patient experts and patient organizations. Our approach is rooted in genuine empathy and a deep understanding of the challenges faced by those living with disease and conditions. Patients’ lived experiences are invaluable, and we’re committed to leveraging this deep patient knowledge to drive meaningful advances in healthcare. We are committed to gender balance and welcome diversity in every respect.

"admedicum colleagues have genuine empathy and understood the problems of living with the disease. They understood and respected our independent position. It felt like we knew each other already for years and everyone shared a mutual respect."

Emma Margarete Reil

Chairperson, Sklerodermie Selbsthilfe e.V. _{(patient organization)}

Partnering with those Living with their Disease

Our processes always include listening to those living with a disease to ensure their perspectives are incorporated in everything we do.

Utilizing our Network
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When working on a new project, often our first call is to a patient expert or organization from our network to understand their initial perspective on the subject.

Engaging with Patient Organizations

We establish new contacts with patient organizations, who help us find the right people to work with, whether they are expert patients or representative members of their community.

Exploring Online Communities

In addition to engaging with patient organizations, we also interact with disease-related discussion groups on social networks to gather diverse perspectives - always transparent and trustworthy.

Co-Creating Solutions
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Together with people living with the disease, we co-create projects not only for them, but with them. They are active project members, contributing to and shaping the outcome.

Working for Patient Organizations via

Together with our non-profit organization Partners4Patients Foundation, our work also extends to patient organizations in multi-stakeholder alliances. We are happy to lead these alliances, whether as secretariat or project manager, driving towards meaningful and patient relevant change. One key example of this was our role in helping create and serve as Secretariat of the European Alliance for Newborn Screening in Spinal Muscular Atrophy (SMA) for three years.

We are also working for individual patient organizations for example by organizing the European Myasthenia Gravis Summit.

„Although it was our first Summit, it seemed like we did many before and all thanks to our collaboration with Philipp and his team. This collaboration made everything so easy, no stress, no pressure and all very well prepared. Couldn't find a better support. Looking forward to our next collaboration!“

Board of EUMGA

Are you a Patient or Caregiver?
Let’s make a difference together.

Whether you’re deeply involved in your patient community, a EUPATI Fellow, or have in-depth knowledge of your disease, your voice is critical to our mission. We would like to hear from you.